Rare Disease Dashboard
Rare Diseases Portal

Constitution of the Inter Ministerial Advisory Committee for Rare Diseases.

The States may also send their recommendations to the Ministry on the above address. The Central Technical Committee will examine each application and its decision will be conveyed to the concerned State Government for further necessary action.

It may please be noted that after the online portal goes live, only online applications will be accepted. As per the National Policy for Treatment of Rare Diseases, the States have to identify a hospital in the State for treatment of rare diseases. Patients are also advised to contact the Secretary (Health & Family Welfare) of the concerned State to get details of the identified hospital.

Treatment for Rare Diseases will be as per provisions in the National Policy for Treatment of Rare Diseases.

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